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URL: http://scholar.google.com/scholar_lookup?title=Dravet+syndrome+and+parent+associations%3A+the+IDEA+League+experience+with+comorbid+conditions%2C+mortality%2C+management%2C+adaptation%2C+and+grief.&year=2011&author=Skluzacek&journal=Epilepsia.&volume=52&issue=suppl+2&pages=95-101&doi=10.1111%2Fj.1528-1167.2011.03012.x&pmid=21463290